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Dyslexia, the Education System and Life in general

5. Dyslexia and the Education System (Tribunal)

March 2014 and I have now just received my second Note in Lieu (NIL) instead of a Statement. This gives more details of the Support Josie needs but doesn’t have any funding attached to it, so almost impossible for school to provide.

All the reports clearly state how far behind Josie is, and how much support she needs. My only way forward was to apply for a Tribunal Hearing.  I spoke to Parent Partnership who said I would now need help from www.ipsea.org.uk as they are funded by the Local Authority (LA).

I tried ringing IPSEA unsuccessfully for a couple of weeks, and I went onto their website and it was straight forward to download a form asking to Appeal the decision made by the LA. I filled out my name, ticked a few boxes and then attached all the relevant paperwork that showed Josie’s needs and the information from the LA. I heard back from them with an Appeal Hearing date in December 2014. I was shocked at how long this was, but then I read all the paperwork and saw that this was for a good reason. It gives you time to work with the LA to try to come to an agreement. All correspondence between us and the LA now had to be emailed to the Tribunal Offices.

Josie is now at the end of Year 8, and I was so worried that time is running out for her education. In Year 7 I had been told that with the right support she can catch up. Now I’m looking at a child that is becoming less interested in school as she falls behind and feels increasingly more stupid every day. Thankfully she still believed me when I said I could make things right and get the right help for her. She would get up for school every day, and she would try so hard. I had to make this right for her. I had to keep believing in myself.

I couldn’t sit back and wait for answers to come to me. I wrote to Mr Gove (Head of Education – total waste of time) and my local MP (brilliant), I was constantly contacting the lovely SENCo at Josie’s school, the LA, and anyone else that I could think of.

I’m really panicking now. How can the Education System be so wrong?

(28th March 2015)

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4. Dyslexia and the Education System (Statement of Special Educational Needs)

It is September 2013, and Year 8 has now begun. Everything is taking so long that I wrote to the Head of the Education Department at the Local Authority (LA). I had been advised that I didn’t need to put any details in the letter just the fact that Josie was on School Action Plus and that I am asking them to carry out a Statutory Assessment as she is falling behind even with a high level of support over seven years. I showed the letter to Josie’s school SENCo and I was told to add that the school supported my application.

The LA wrote back to me asking me to complete a Parental Questionnaire giving as much detail as possible and they wrote to the school too for their records. Once they had looked at the information we had sent, they wrote to myself and the school to say yes they would carry out a Statutory Assessment to see if Josie needs a Statement of Specisl Educational Needs. I was now asked if I had any more evidence that I wanted to add to the case, and they collected reports from all the professionals that had been involved with Josie, including the Educational Psychologist whom she had just seen. All of this information was to be submitted by January 2014.

Waiting again, I was so nervous. But all the professionals seemed sure that Josie needed a Statement, her needs were clear and very obvious. It was even mentioned that the process should be quite quick as it was obvious that she needed support. But in February 2014 I received a ‘Note in Lieu’. This is a letter that details all the support she needs and confirmed that she would need Speech and Language Therapy (SaLT). But this a Note in Lieu (NIL) is not legally binding. The support doesn’t legally have to be provided, and there is no extra funding to provide the support.

I arranged a meeting with the Caseworker from the LA and Josie’s SENCo at school. We talked about all of Josie’s needs. I don’t feel confident in meetings that I can get all my points across, so I typed up a list of all the main facts I felt the LA needed to know, and instead of reading from the list, I gave them copies to work through during the meeting and then keep for their records. They suggested several ways the school could try to provide the support. But none of the suggestions were possible, also SaLT is not funded at Secondary level without a Statement. They agreed that Josie’s needs now seemed greater than they realised from the reports that they have, and they said that they would send this additional information back to the Panel to review at their next meeting.

Then in March 2014, I found out that they have issued another Note in Lieu. This one is more detailed and it also says they are sending someone into the school to suggest ways they can help Josie. Totally unbelievable, how can they not give her the help that the Educational Psychologist, Dyslexia Specialist and Speech and Language Therapist all agree she needs.

I had no choice but to apply for a Tribunal, to take the Local Authority to Court…

(Updated 28th March 2015)

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3. Dyslexia and the Education System (Meetings)

Now we have the Full Dyslexia Assessment showing all of Josie’s strengths and weaknesses. I went home and started obsessively googling anything and everything, trying to find miracle answers.

‘Parent Partnership’ seemed to keep jumping out at me. They are funded by the Local Authority, so they are there to support and guide you, and they did an amazing job keeping me on track and focused when I just wanted to get angry at everyone. They have all the right up to date information, and know which steps you should be taking next. One lady in particular helped me, and she really was beyond amazing, she was my lifeline when things seemed impossible.

I found this amazing book; Guerrilla Mum: Surviving the Special Educational Needs Jungle by Ellen Power. I can’t thank her enough for writing this book, she gave me inspiration to become the expert, and read about the Special Educational Needs Code of Practice, and learn what rights children have in education.

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“Remember the Guerrilla Mum Mantra: Don’t take no for an answer, never give up. If in doubt, telephone, email and write letters.”

I had a follow up meeting with the lady that had carried out Josie’s Assessment, she explained that Josie has trouble processing the sounds in words, and that she needs specialist teaching.

At this point it was around June 2013, I had enough feedback about Josie’s Dyslexia Assessment to understand that she would need a ‘Statement of Special Educational Needs’, to get the extra funding and exact teaching that she needs.

I signed Josie up to attend a ‘Children Will Shine’ Dyslexia Workshop on a Saturday morning. This was run by Croydon Dyslexia Association (through the British Dyslexia Association). Josie loved this group on a Saturday morning. She learned ways to learn tricky spellings, and it boosted her confidence. She even didn’t mind the 25 mile round journey, as she wanted to learn and knew that the teachers had the time and experience to teach her.

I also had a meeting with the Speech and Language Therapist, who gave me some ideas on how Josie can breakdown words, and she mentioned that she has a very good long term memory. We have to teach her how to store information in her long term memory.

The next meeting was at the school, with the Special Educational Needs coordinator (SENCo), Head of Inclusion and a Specialist Dyslexia Advisor. We talked about Josie’s progress and the things school have put in place for her. We discussed things in the Dyslexia Report and then the school turned the subject to the fact that I should maybe consider looking at specialist schools that can offer her more help. They were worried that the gap between herself and her peers was widening, and she would become less interested in school. The bottom felt like it had fallen out of my world.

The school had mentioned that Josie would need a ‘Statement of Special Educational Needs’ to get the help she needs, and that they would continue to build their evidence before approaching the Local Authority to carry out a ‘Statutory Assessment’. Josie would need to see an Educational Psychologist at the school, but she wouldn’t be available until the new school year.

The summer holidays came… my piles of research were building. I had to wait… (again)

(Updated 28th March 2015)

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2. Dyslexia and the Education System (Discovering Dyslexia)

As soon as Josie started Secondary School, I contacted the Special Educational Needs Coordinator (SENCo) at school. I explained my worries and asked if she could be tested for Dyslexia.

In the beginning of October 2012 a Dyslexia Screening (a short 15 minute test) was carried out which showed up ‘traits of dyslexia’. All that it recommended was that she should be assessed again before sitting her GCSEs, to see if extra time would be allowed for exams. I couldn’t see how extra time in her exams would help when I felt it was so obvious that she needed more support now.

The school put extra classes in place, so for an hour a day (four days a week) my daughter attended a Fresh Start Reading and Writing group during school time, and also small maths groups. This was to help her catch up, but meant she would miss out on other vital lessons. I needed to make sure she was getting the right help and to find out about dyslexia, and a web search turned up endless websites (look at my Links page, for the ones I found most useful). I couldn’t find anything local and really felt out of my depth. I telephoned the BDA helpline about the same time, with no idea what questions to ask, I knew nothing, but knew I needed help. From what I can remember it was suggested that I look on the BDA website to find my Local Dyslexia Association. My closet one was 15 miles away in Croydon, so I decided not to go.

I then continued my web search finding Dyslexia Action, Helen Arknell, etc etc  and felt increasingly more lost. I phoned Dyslexia Action, and because I didn’t know what I needed to ask, I just found out about tuition, which was out of my financial reach, so I kept on searching.

I have started my blog now because I felt so lost at this point.  I had no one to hold my hand. 

How could someone give me answers when I didn’t understand the questions?

One day I accidentally spotted the British Dyslexia Association ‘Empowering Parents’ free workshop, in March 2013 (Waterloo). I booked a place and then nervously went along and listened to speakers talk about Special Educational Needs, Code of Practice, Statements, EHCPs, MindMaps, and endless other things that I had never heard before. But the main thing I realised is that I need to understand my daughters strengths and weaknesses, which I would get in a Full Dyslexia Assessment. Also that I would have to pay for this myself (between £300 – £600). It was mentioned that my nearest place to contact would be Dyslexia Action.  I also found out that there was a meeting at Croydon Dyslexia Association a couple of days later, and that I might find that of interest, and it isn’t a million miles from where I live.

I went along to the Croydon meeting armed with the Screening Test results and samples of Josie’s work. I met some lovely people, and was given the name Sarah Beard (at Dittas) as she carries out Dyslexia Assessments. I was told that she would be the best person to talk to.

I telephoned Sarah, and said I think I need a Full Dyslexia Assessment carried out as I was concerned that my daughter might be dyslexic, and I want to understand her strengths and weaknesses, so myself and her school can understand how best to help her. After I completed a questionnaire, sent more samples of Josie’s work, and copies of all Speech and Language reports. I had another chat with Sarah and she discussed the implications of the Assessment. How would we handle the situation if it shows no signs of dyslexia, if the problems are caused by a low IQ, or other issues. I said I just needed to understand what the issues were, and then find out how to support my daughter.

April 2013 Dyslexia Assessment day… My daughter enjoyed the assessment as Sarah really is a wonderful lady. When we went back to collect her, she said almost straight away, that yes she has dyslexia. Now we have to wait for the report for all the details.

Finally we have an answer, for all the struggles. Now everything will fall into place…

(Updated 28th March 2015)

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1. Dyslexia and the Education System (Junior School)

I would like to share my story for others to learn from. To help empower other parents in the fight for the right education for our children.

My fourth child always struggled with spelling tests. She would get so upset when we tried to learn the words at home. Unlike her older brothers, she just couldn’t seem to learn them. At the time I thought it was more to do with her believing that she couldn’t learn them, and put up a block.

I felt like a useless mother as I couldn’t even teach her basic spellings, that I believed we could easily make memorable for her to learn.  Her self esteem dropped and she totally believed she was stupid and this affected the whole of her education and also her social life in and out of school.

I tried to boost her confidence, she is a clever child. She is good at seeing the bigger picture in life and can out argue me in a debate. She has always been very observant, not much gets past her, and her long term memory is above average. At the same time she struggles with her working memory, as she sometimes struggles with a list of instructions she has to follow.

Primary school picked up on a few issues and put her on School Action Plus (SA+) at the beginning of Year 1. This means that she received an Individual Education Plan (IEP), this is a sheet of paper with individual targets ie. who will practice rhyming words with her, and things to practice at home. The IEP should be reviewed termly with parents.

At around this time I started college to train as a Teaching Assistant. I volunteered at Josie’s school for a couple of mornings a week. I really enjoyed helping the children and spotting which ones needed extra support. But as I battled with Josie at home I felt so useless. How can I be any use to someone else’s child if I can’t help my own. This totally knocked my confidence in myself and actually put me off approaching the school for advice about Josie as I felt like I was a failure as a parent. And ultimately stopped me fulfilling me dream to be a Teaching Assistant.

By Year 3 the school called in the local Speech and Language Therapist (SaLT). The tests showed up areas of weakness and made suggestions of various things for the school to practice with her.

In Year 5 I had a meeting with the Special Educational Needs Coordinator (SENCo) at the school. They said that they would be taking away the support that she receives in class, so she learns to become independent ready for secondary school. I asked if she could be dyslexic, as she is still reversing b,d,p,q and various numbers. I was told that she is being given all the help she needs, and that she is being taught the right way for her.

Year 6 involved another SaLT Assessment, and this time when I asked if she could be dyslexic, I was told that if she was tested, it would probably show up that she is. But I would have to think carefully about having her tested as the ‘Dyslexic Label’ can sometimes give children an excuse to stop trying.  I was told that as most of this years school budget has already been allocated, it would be better if I waited until she starts secondary school…

(Updated 28th March 2015)

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